Recap of a few Days

Many of you have been probably wondering what has taken me so long to write another article. I wish I had a good excuse but I do not. I have been spending most of my time at the computer lately studying and when I do have a moment I generally do not want to sit at my desk. That said, I am here and ready to write.

I guess I should recap what has happened since Tuesday. First, we did take a trip to Jett's house to visit him Tuesday afternoon. Being a brand new baby, we felt quite comfortable that he was neither sick or was going to try and touch Parker if he was. Jett is such a little cutie and although Parker was more interested with "Shag carpeting" and his Uncle Michael's piano playing then Jett we were more than happy to gawk at him.

It has been two weeks today since I emailed the Dr. in Italy to see if he had a date for Parker. He had told us that it would still be a couple of week before the vector was approved and he would call us then to define a date. With that, we are hoping to hear from him very shortly.

I purchased a Bruin baby walker on Wednesday evening for Parker. Now, that he is older than a year we wanted to give him the option of trying to walk with some support instead of cruising, crawling or taking his truck everywhere. I had done my research because I heard that infant walkers are dangerous and are actually forbidden to be sold in Canada. However, these forbidden walkers are actually more like mobile Exersaucers. I feel very confident that the form of walker we purchased is no less safe than any other toy that Parker currently has to play with. Of course, when I put the walker together and tried to get Parker to use it, he was much more interested with the button and shapes that come with it. Parker has yet to use it as a walker. As a result, we are unsure if we are going to keep it. If we do keep it, it will be because of the shaped blocks that he seems to like. I guess we will give it a few more days.

I had mentioned a week a go that we had met with the dietician about Parker's diet. We recently found out that she was worried that we never let Parker feed himself. As a result, when he goes to school and he needs to feed himself, he will just sit there staring at his food, not knowing what to do with it. We did not think she had that impression when we met with her. If we had we would have told her he has been feeding himself puffs and cookies for several months now. Recently, we have let him get even more independent with his eating. Just today, I let Parker try and feed himself orange pieces. Of course, he was more interested in smushing them in his hands we were able to get a regular meal into him.

We did go to Sick Kid's today for Parker's injection of ADAGEN. Recall that ADAGEN supplies Parker with the enzyme that he is missing that is responsible for removing the toxins in his body that kill all of his lymphocytes. Before Parker started taking ADAGEN they took a sample of his urine for testing purposes. It recently came back from a lab in the States showing that he had quite a bit of the toxins in his urine. An expected result since his body is unable to remove them without the enzyme. Today, they decided to take another urine sample for comparison sake. This sample after returning from the States in a few months should show that he has no toxins in his urine. Then, after he has his gene therapy and is no longer taking ADAGEN they will take another sample and see what it shows.

Parker still does not enjoy having his teeth brushed but he does have the whitest teeth I have ever seen.

Lastly, Parker has decided that he not that interested in napping this week. Other than a 30- 45 minute nap, Parker has decided against sleeping during the daytime.