Simple Things (Post by Mom)

It's amazing how the things which so many people rightfully take for granted can make the world of difference to someone else. I find myself being that "someone else". Since our arrival in Italy last week, Kevin and I have finally been able to experience some of the things which often become second nature to many parents. For the first time, we have been able to bring Parker to the grocery store, in and out of buildings and areas which are not confined to the hospital. For the first time, we have been able to hear people expressing how beautiful our child is "bello, bellissimo" are words we frequently hear. I mention this today because it has made me feel so happy. In this very brief time, I feel so blessed to be doing little things with Parker which every mom should be able to do from day one and not even think twice about.

I have noticed a positive change in Parker as well. His stroller, which used to be a struggle to put him in as it was usually only used for visits to Sick Kids, has become a novelty for Parker. One mention of the word and he is at his stroller in seconds waiting to go on his next adventure. Today while we were walking to the hospital, we saw another dog which came rather close to Parker in the stroller. If only I could have captured the pure excitement and happiness in Parker's eyes and face. It was so sweet, innocent and genuine.

I often look at my little guy in pure amazement. He is the strongest person I have honestly ever met (a quality he must inherit honestly from his daddy). No matter what Parker has endured in this short time of life he always comes through with a smile and a laugh that is contagious. I think this holds true for many sick children. They are often so full of life and contentment with the simplest of things. Parker does not need a reason to laugh or smile- he just does. He is the happiest person I have ever met. I know that he will have many friends one day and that he will grow to be a very compassionate and loyal person. For this, I am very happy.

These past 14 months have been the most difficult months of my life. Sometimes this entire process actually feels surreal. Sometimes, I find it hard to believe that we have actually experienced the things we have. Sometimes, I am more than frightened about what is yet to come, but I know that we will continue to get through everything and Parker will be a healthy little boy. I would like to personally thank everyone who has supported us including my husband who definitely puts up with his share from me. Despite everything, he is always extremely positive and although he may not hear it enough I do gain a lot of strength from his positive energy.

I have always been a "home body". I am the first to admit that I love being close to my parents and family and I am very proud of that. I feel very fortunate to have such a strong bond with them and my brother. I know that I am also blessed to have many friends in particular my best friend Natalie who I consider a sister. I have always thought that people should consider themselves very fortunate if they can find a friend in their lifetime who they completely trust and can depend on. Friends and Family are imperative when you have a child who is fighting for their life. I don't think there could be any other time in your life when you could need people more.

When I began this message, I wasn't sure what I was going to even write about, I just knew that I wanted to write something. Now I think that the main message I want to get across is for people to really try and relish the simple things in life. Take an extra 5 minutes to snuggle your little one, pick up the phone and call someone you have been meaning to for some time and tell someone how much you love them just because you can. Take something that you would normally take for granted and turn it into something that suddenly has more meaning and thankfulness to it. Today I know that I am blessed to have some more normality in my life- no matter how small it may be. I know that there are other families who are eagerly waiting for my "simple thing" and for this I consider myself to be very fortunate.

Ciao!