I would first like to wish everyone a wonderful holiday season. Secondly, I have to say that we had one of the best couple of days in a long time. Dr. Aiuti emailed us Christmas Eve to let us know the results of Parker's six month follow-up of his gene therapy. The results were positive with some numbers increasing and other decreasing since September but in the end he said that Parker is pretty much inline with the other patients that did well. For now, we will continue going to Sick Kids every two weeks for IV and to get his latest numbers. His most recent results had his lymphocytes around 600 and his neutrophils still close to 1200. Parker's liver enzymes were very slightly elevated and just above the normal range so we will be looking for those to decrease at his next examination. If they continue to increase they will do an ultra sound to see if there is anything abnormal. Most likely (and hopefully) it is just a fluctuation.
On Christmas morning Parker opening his gifts. This year was much different that last year in the sense that it was less about the paper and more about what was inside. When he would get to a gift he really liked he would repeat "I want, I want" instead of going to the next wrapped gift. Parker loved all of his gifts and daddy is still putting things together the next day.
We followed the gift ceremony with Brunch with Auntie Katie, Uncle Michael, Jett, Nana and Gaga. It was another reason to stuff ourselves with food. After that, it was off to Auntie Katie's families for Christmas dinner. I have to say that the meal was absolutely incredible and it was nice being able to spend Christmas with family and friends. Parker also really enjoyed himself. It is nice being able to bring Parker with us when we do things like this. With no one sick it made it much easier for us.
I have uploaded quite a few images for everyone to see. Lastly, thank you to Canada AM for doing such a wonderful segment on Parker and his immunodeficiency. We really appreciate the time you took to share Parker's journey with others.
Wednesday, December 26, 2007
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3 comments:
What a wonderful Christmas we had.How very very special it was having our family together and enjoying every moment. How handsome were you and Jett in your checkered shirts. Thank you for our best Christmas ever. We will never forget it. We love you all so very much. Keep those numbers going up.
Much love always,
Nana and Gaga
xoxoxo
Parker Pants!
Merry Christmas little one! It looks and sounds like you had an absolutely wonderful day! Yippee! I am so glad that you were able to spend the day with your family who loves you so very much! You are such a sweetie pie. I hope that you are enjoying your new toys that Santa brought...fun, fun, fun!
I saw you on TV Parker Pants and I bragged to everyone I know that I am lucky enough to get to see you in person!
Lots and lots of love. Merry Christmas and best wishes for a New Year that brings you and your Mommy and Daddy EVERYTHING that you could possibly wish for!
I love you oodles and oodles!
Love,
Auntie Natalie xoxoxox
Hey Parker
So nice to see that you were able to spend this special time with your family. Continuous good health in 2008. I know your numbers will continue to grow.
Stay strong big guy!
Love you tons
Nonno & Nonna
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