We are hoping to get Parker some sort of activity set to play on outside very soon. It is just too stressful to try and take him to the park and carefully lysol all areas of a swing before he is able to use it. It is also very difficult to gage an optimum time to take him. I also find it taxing when people watch me as I lysol down his swing and ask me why I am doing that. I know that people are genuine and have the best intentions and do not mean anything negative when they are asking or staring- they are simply curious. However, sometimes I feel like I am at the point where I just don't want to have to explain why I am doing it because then it makes me sad. It makes me feel sad that my sweet, precious little boy has to take so many precautions just to go on a swing that is second nature to most children. Parker absolutely loves going on the swing. He laughs the entire time and has a smile that never fades and then of course cries when he has to go home...
On Monday, I had a special treat and went into my work for the first time in almost two years. I really miss my job. I absolutely love teaching and have always expressed that I cannot wait until the day when I can eventually go back. I did not really realize just how much I missed it until I went back. There was such comfort going back to such a familiar place, surrounded by colleagues and friends who know and care so much about Parker. It made me feel so good to know that I have so much support at my work. Everyone was telling me how they keep up with the blog and genuinely expressed their hopes that our family would soon be able to live a "normal" life again. I want to thank everyone for their kindness and support. I had a fantastic visit and cannot wait for everyone to eventually meet Parker one day!
Lastly, I would like to remind everyone that tickets are still being sold for the golf fundraiser. If you are interested in purchasing tickets then please e-mail the site soon. Parker's Nonna and friends have been working very hard to make this event successful and I know that it will alleviate a lot of stress when they can focus on other aspects of the fundraiser besides ticket sales. Individuals and families have also expressed interest in sponsoring holes, so I also wanted to emphasize that it does not have to be a company to do this. Anyone can sponsor a hole at the tournament. We sincerely appreciate everyone's support to us. It means so much to us and words could never do justice to express our sincere gratitude.
For tickets, to sponsor a hole or donate a prize, please e-mail:
golfingforparker@gmail.com
We hope that everyone has a safe and beautiful week-end. It is crazy to think that in such a short time we will be back in Italy. Please continue to keep Parker in your thoughts and prayers as he soon approaches his one year anniversary of gene therapy. He is a fighter!
Ciao!
Ciao!
2 comments:
Good Morning Parker Pants!
I am so glad that you have been able to be outside enjoying this wonderful weather! It is going to be another beautiful day today...have fun on your walk!
Tell your Mommy thanks for all of her amazing support this week...did you know that you guys are the BEST?!?!
Love,
Auntie Natalie xoxo
Hi Parker!!
I hope that when you come back from Italy it will be sunny and warm, because I want you to come and play outside at my house with me! My Mommy got me some new Backyardigans shovels and rakes for us to play with in the dirt!
Soon you will be able to go swimming at my house, too! We are starting to get our pool ready. U have a life jacket you can use, too!
I'm trying to talk my Daddy to build us a big giant play set with some swings and a slide on it! Don't worry - my Mommy will help us get my Daddy to build it!
Have a happy, fun day, Parker. I can't wait to play with you soon!
Love Mackenzie
xoxoxo
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