A Tiring Day

To be honest, I am extremely apologetic for not writing for the past few days. I have honestly been a little more tired and much more stressed than normal and as a result, it has been much harder for me to write. So much has happened in the past few days and I have been concentrating more on that then writing the blog. Mommy is currently putting Parker to bed right now so I have a little bit of time to write today's article.

I guess I could write about quite a bit today but I have decided to hold off on most of what I could write today and concentrate on what I want to write today. We did have a trip to the San Rafaele today for Parker's ADAGEN injection. When we got there we realized that Parker was also going to have to be giving some blood since he had not given enough a few weeks ago. As always, Parker put every effort into fighting the nurses and his mommy and daddy so that he did not have to be poked longer than possible. Daddy had Parker's legs and arms as mommy tried distracting the little monkey while the two nurses took enough blood that was needed. This was definitely one of the many things we wish we never had to experience with our little guy. Sometimes, it is just so hard.

We also got to meet with a doctor on the team afterwards who let us know that Parker would have to begin an anti-fungal and anti viral medication, in addition to his Septra (anti-bacterial) medication for precautionary reasons. To be honest, we are not very excited about starting Parker on new medications as he tries to fight anything that comes at him in a syringe. Regardless, we will do our best to get Parker's medication into him with the least amount of struggle. Anyone who has ever had the privilege of meeting Parker can attest to the same thing- he is one strong monkey. It is so hard trying to hold him down in order to do things which are necessary. I just wish that I could rationalize everything with him and let him see that we are only trying to help him. His mother and I would NEVER do anything to hurt him and it really can be overwhelming when you see your little guy in pain or trying to protect himself.

I know that we are only at the beginning of this and we are trying to stay positive with every ounce of our being- sometimes you just have days when it just hurts and today was one of those days. Parker is scheduled to have IgG (Gamma) again this Thursday. Although, he does not really need it, the team wants to be sure that he is really protected. That being said, Thursday is likely to be another tiring day.

I promise to write tomorrow when I am feeling like I have some more energy. My wife and I have been sleeping a lot more lately. We find ourselves resting whenever the little monkey is catching up on his beauty sleep. As of yet, there is nothing planned for the DesLauriers family tomorrow except some new medications and some nice walks outside.

Ciao!