Tuesday, March 25, 2008

Not much new to report...

Well we must apologize for not updating the blog regularly lately. It is much more difficult with daddy working and mommy trying to occupy the little monkey. We had a wonderful Easter week-end or Pasqua as it is called in Italy. It was so nice to spend quality time as a family and we took advantage of our nice long week-end together. We hope that everyone reading also had a wonderful holiday week-end too! Yesterday was also a very special day for us as my husband and I celebrated our third anniversary and were actually able to go out for a nice dinner thanks to Nana and Gaga! We were unable to celebrate our first two anniversaries together for obvious reasons, so it was a special treat to do something nice together on our special day.

It is hard to believe that we will soon be getting ready for our trip back to Italy so that Parker may have his follow up tests. It is surreal at times to think that it has almost been one year since Parker received his treatment. When I think of everything we have accomplished and been through together as a family it really is mind boggling! We just pray that Parker will continue to do well and respond to the gene therapy positively. Each day that passes is one day closer to Parker living a much deserved normal life and that is very exciting. I am sorry that this is so short, but I must go and do a million things before the little guy wakes up from his nap. I will make sure that there is a blog sooner than later for everyone to read.


Wednesday, March 05, 2008

A Ride Home

It has been quite some time since I last wrote an article. Today, I find myself on the train on route to home from work. Work has been going very well, as I enjoy applying what I have learned that last couple of years. That said, there are definitely some things that I really miss about being home.

It is hard to believe how much Parker has grown and developed over the past couple of months. During the week I don't normally get home before 7pm, and as a result my time with my son is extremely limited. There are days when Parker is in bed by the time I get home, yesterday being one of those days. I could probably count the number of hours I spend with my son from Monday through Friday on one hand. I know this is probably very normal for most fathers; however, it is all very new to me and Parker.

This morning on the train, I called homed while waiting at Union station. The train was not very busy so I asked to speak with Parker since I knew he was fascinated with the phone. Although he normally just places the phone to his ear and listens attentively without responding, today we had a conversation. Every time I would ask him a question he would respond by rambling about something. Of course, I had no idea what he was saying but it was obvious to me that we were having our first conversation on the phone.

I also know it has been very difficult for my wife since I have returned to work. With it being extremely difficult to leave the house with Parker without someone else to help ensure he has not touched something that could get him sick she does find herself bound to the house for most of her days. We have been lucky, as her parents will usually give her a break for one to two hours to get some things done during the day.

Then there are the hospital days. There have been three occasions since I began working again in which I have not gone with my wife and Parker to the Hospital for Sick Children in Toronto. Parker's Gaga has been kind enough to take my place but I would much rather it be me with my wife and son during these difficult days. Thank-you Gaga for taking such good care our family!

The train. I figured the ride to work on the train each day would not pose much of a problem. But, as the man across from me coughs uncontrollably he reminds me that with each ride to and from work I place my son at risk my potentially becoming covered in germs. It has only been a month and a half but I have already been sick once. There is only so much hand washing can do. With that I have been contemplating driving to work each day. It would guarantee me a seat and ensure I do not get any unwanted germ-filled droplets projected toward me from the person a couple seats over who does not know that you don't get an award for having the loudest sneeze.

I should be arriving to my station shortly. Today is one of those special days where I will get to see my son for more than an hour when I return home. For that reason, I better sign off and make my way to the door so I can be one of the first off the train. The last thing I want is to be stuck on a crowd as the mob tries to make its way down the escalator.