This may be the last time I write in a few days as Parker is going in to the hospital for a few days. He is getting a bone marrow harvest for back up reasons in addition to getting his central line put under his skin.Parker will be put under for the procedures and will have some medications to keep him from feeling the pain when he wakes up. Parker has only had one other time in which he had a general anesthesia and surgery. It was when he had his lung biopsy done. We were so upset when that happened at about six weeks of age. Tomorrow's procedure is more of a routine procedure but you never want to see your child have to go through anything like this. My wife and I are doing our best to stay positive. Me? I am good at concentrating on the positive but my wife has a much more difficult time with it. I just try and remind her
that this is just one of the things that must be done so that Parker can have a normal life.On a more positive note, Parker started walking a couple of days ago. His longest run was 12 steps in a row. I am pretty sure that the little monkey should have no problem being a professional walker by the time he begins the actual procedure in mid-May.
Parker is in for a little surprise on Thursday (if
he is home from the hospital). Otherwise he will get it on Friday morning. Parker's Nana and Gaga are coming for a visit for a couple of months. I am sure that they are worried if Parker will remember them but my wife and I both know that he will.I just wanted to thank everyone again who visits Parker's site. All of your support is so appreciative.
It is so nice to go to StatCounter and see how many people came to the blog each day. We are arriving at the magic number of 150,000 hits in the next few days; something that we never could have imagined a year ago. We are glad that so many people are becoming aware of Severe Combined Immunodeficiency. Parker's form ADA deficiency is only one form of many different types. It just happens to be one of two that currently have gene therapy trials currently being conducted (X-Linked SCID is the other form).Ciao per oggi! (Translated directly into English is Bye for today -- I don't you actually say it that way here in Italy)
6 comments:
Our Clever, clever little man:
We just had a feeling that you would be up and taking steps by the time we arrive in Italy. In no time, you will be up and running and how very proud we are. I started to cry when I read this on your blog. One more sleep and we leave on the most important trip of our life. We are soooooooo excited
and can hardley wait to see you. I do so hope you will remember us. Maybe when Gaga has you on his shoulders and mommy says "it's those people" all will come rushing back.
Good luck today my brave man. Show them all once again what you're made of.
We love you all so much and are counting the hours.
With loads and loads of love,
Nana and Gaga xoxoxo
Dear Parky,
You are so lucky to be having your grandparents come see you for a couple of months! Won't you have fun!
We know you will be strong for your bone marrow harvest. Don't worry sweetie, you will recover fast because you are a tough little guy.
We are so happy you are walking now! So exciting!
Have a great week! We miss you like crazy.
Love,
Auntie Christini and Uncle Mikey xo
Hey Parker,
Hooray for you for taking all those steps, but even a bigger hooray for being so brave.
We love you big guy you are always in our thoughts and prays.
I hope you get to leave the hospital on Thursday for Nana & Gaga's arrival.
Love you tons
miss you more
Nonno & Nonna
Hi There Parker Pants,
You will be in all of my thoughts over the next few days as you go through another step of this journey. You are so strong and such a trooper for all that you go through Parker Poo and I know that your Mommy and Daddy will help you all the way sweetie pie. It will be a lovely surprise to come home and see your Nana and Gaga...what a treat for all of you. You deserve to be surrounded by people who love you little one...enjoy your wonderful company! And of course, you will remember "those people" - I have no doubt at all that you will!
Please give your Mommy and Daddy an extra hug for me and tell them that I love them.
Lots and lots of love Parker Pants,
Auntie Natalie & Uncle David xoxoxo
Parker,
I am so excited for you that you get to see your Nana and Gaga this week (and for you Tracy I know you need this a lot). I know as soon as you see them you will remember. No one ever forgets a great Nana and Gaga like yours.
As usual you will do great in the hospital I am sure. We will be thinking of you the whole time.
Love and hugs to all of you!
Laura, Craig and Elizabeth
Hi Little Parker Pants,
Just a little note to let you know that I am thinking about you today. I hope that everything went smoothly and that you are resting (or maybe even sleeping) soundly right now.
I love you little one,
Auntie Natalie xoxoxoxo
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