Wednesday, January 09, 2008

Life in 2008

So, things have not changed too much for us in the new year. My wife and I still spend most of our time at home with Parker. She plays with him most of the time and I spend much of my time preparing for a career in Java Development.

I have felt a little under the weather the past couple of days, so as a precaution I have left my wife and son alone. For the most, I have spent my time in bed reading. I even made a decision to not play hockey tonight in hopes that I will be better by tomorrow. Vitamin C, water, ginger ale, and Cold FX. That has pretty much been my diet.

Lymphocytes and Neutrophils have pretty much remained the same over the past month. Parker continues to have 600 lymphocytes and around 1100 neutrophils. We really wish that his neutrophils would return to a normal level as was expected after gene therapy but they still sit at the same number they have been 30 days post gene therapy. We will have to wait and see if they increase as his metabolites decrease further.

Parker has continued to be a happy little boy. He does have some new words, although his speech is hardly something to get excited about. That said, he does continue to strive in many other ways. He absolutely loves puzzles. He has a wooden puzzle of the letter of the alphabet that he can put together quite quickly. He loves playing with trucks and cars. He got a Go Diego Go jeep from his Nana and Gaga for Christmas that he loves getting in and out of.

He is strong. We call him Bam Bam. You know from the Flintstones. He loves lifting everything up over his head. The basketball net he got from Christmas he carries across his playroom on a regular basis. His bed mattress? If you put it on the ground he squats in front of it, picks it up, walks forward and then flips it over. All with that grunting noise that guys make when they are lifting up something heavier than they should.

Lastly, I would like to thank anyone who put us in their prayers or made a donation over the holidays. Things have started to get harder financially around here and we really appreciate any help that we get. Thank- you.


Uncle Mikey said...

Hey Parker,

Only one week till your BIRTHDAY!! Just think, you'll get a chance to double your gift total from Christmas. Glad to hear things are going well in the new year, your such a strong and happy big boy so we're possitive this year will bring nothing but great strides in your recovery. Love you tons and tons...your cousin misses you and talks about you all the time.

Uncle Mikey, Auntie Christini and Jacob

Auntie Natalie said...

Parker Pants,

So nice to see your sweet little face this morning! I cannot wait to celebrate your Birthday! Turning Two! Yippee!

I hope that your Daddy starts to feel better soon...I bet that you miss playing with him! But I know that Mommy is lots and lots of fun!

Stay strong little one and know that you are loved, loved, loved!

Auntie Natalie xoxox

Nana said...

How cute are you and Jett together in your jeep.Being strong like Bam Bam, I'm sure happy that you didn't pick him up in the jeep and throw them both over.

Hope Daddy feels better real soon so you can play together again.

All our love as always,

Nana and Gaga

nonna said...

Hey Parker,

Looks like you and Jett are getting around pretty good in your new Jeep. Before you know it you will be asking for the keys for a real car.

I hope your daddy feels better soon, I know how hard it must be for your Mommy.

Love you tons
Stay strong big guy!

Nonno & Nonna