Monday, May 29, 2006

Big Day Tomorrow!

Parker has a big day ahead of him tomorrow as he is scheduled for his next enzyme injection. He used to get the injections on Mondays and Thursdays, but they have recently been changed to Tuesday and Fridays. This will mean one less visit to Sick Kid's for us as since clinic is on on Friday's. Clinic is when Parker would get his CBC done to check his blood counts each week.

In addition to getting his enzyme injection, Parker will be giving 10 ccs of blood so that the flow cytometry test may be repeated. Recall that this test will check to see how many of the different types of T-cells he has. The last test revealed that Parker was normal for his B-cells and NK-cells, but was still below the norm for CD4+ and CD8+ cells. Being on PEG will never restore these to the normal range but we do want to see a trend illustrating that they are increasing. I am unsure if we are only looking for this particular trend or if we need them to reach a specific number before we may go home for the summer, as we await a journey to Italy. The last test revealed that Parker's CD4+ cells had reached 39 from 9 when we were admitted and his CD8+ cells had reached 15 from 1 when we were admitted. The same blood sample will also be used to perform his CBC (complete blood count).

Lastly, Parker will be reintroduced to Septra as a precaution to PCP pneumonia. He was on Septra (orally) but was taken off of it when he became neutropenic. He then began Pentamidine (IV) once every two weeks in its place, and as a result, Parker is no longer neutropenic. Now that we are closer to going home, they would like to try the Septra again since it is much better in acting as a deterant to PCP. Although we are anxious about the switch back, it will be monitored very closely and stopped if his neutrophil counts decrease. The fact that Parker will not need an IV is also reassuring.

I did an interview with the Corriere Canadese, the Canadian version of the Italian newspaper. I am not sure when the article will come out, but it will be in Italian. No problem here. I am working on my Italian each and every day.

Parker is doing very well. He has taken to his regularly concentrated formula and has continued to grow. I had the little guy on his tummy for a good five minutes before I picked him up and gave him a big hug. The occupational therapist also came by today. She was very pleased with his accomplishments. Parker is very close to rolling over on his own (back to tummy) and must now work on pushing up with his arms when he is on his tummy. I know it is a lot of work, but a few push ups never hurt anyone!


coolauntiekatie said...

Hiya Cutiepants!!

I know today's not exactly going to be a fun one.........but stay strong little man. Pretty soon, you and Mommy and Daddy will be going on nice long walks in the beautiful sunshine! Not much longer now!!!!

Love ya lots and lots,
Auntie Kate xo

Elizabeth said...

Hi Parker Darling!

Well I wish you tons of luck today - I am thinking of you all the time! I know you can do it, you are such a strong boy!

Love, Elizabeth

nana said...

Hello Nana's little man:

Hope you are feeling much better after they finished your injection.
Nana misses you and loves you so much. We can hardley wait to see you again. How are all your friends i.e. the bees, the monitor, etc. Are you still laughing at them all? Be happy and remain strong - it won't be long now.

Much love,
Nana and Granddad

Natalie said...

Good Morning Little One,

Just a quick note to say I love you Parker Poo! I hope that today (Wednesday) is even better than yesterday!

Auntie Natalie xoxo

Uncle Mikey said...

Hi Parky Poo,
We heard the great news...We can't wait to see you! Don't worry, we'll make sure we're extra clean the day we get to see your cute little face! We miss you tons...keep up all your hard work big guy!
Auntie Christini and Uncle Mikey xo