My apologies for not writing yesterday. My wife and I were celebrating. Our battle against this disease is a long and draining one but yesterday we got some news to make it a little easier. Parker's cell marker test came back and as a result of the numbers we have been given the okay to go home on Friday.
As a result of being on the ADAGEN for the past month, Parker's B-cells and NK-cells are at a normal level. Although he is still quite low in the T-cell numbers they did increase from 39 to 49 in regards to the CD4+ and 15 to 16 for his CD8+. We always knew that these would take the longest to increase and they still have quite a bit to go but this is something they can do while we are at home. Home is where we will be for the next four and half months as we await the trial in Italy.
To say they that we are happy that we finally get to take our little boy home is an understatement. My wife danced in the room with Parker for over two hours after she found out the news.
I thought to myself yesterday, what was it that I was really looking forward to doing with Parker when we got home? I am looking forward to teaching Parker how to roll over by showing him myself as we do tummy time together.
When I asked my wife the same question, she said that she most looks forward to being able to snuggle him without wearing protective gear. She wants to feel his skin and touch his hair without having to wear sterile green gloves.
We have a lot to do in the next couple of days to get the house ready for his return, like cleaning the carpet so we can do tummy time.
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4 comments:
OMIGOD!!! YAY! I am so happy for you Parker that you get to go home with Mommy and Daddy on Friday! Mommy and Daddy must be besides themselves with joy! I am looking forward to one day soon meeting you and knowing such a strong boy.
Love,
Elizabeth
xo
Way to go Parker!! That's the best news I have heard all day!! Your parents must be so excited to bring you back home!! Your courage & strong-will has paid off! We are really looking forward to meeting you sometime soon! Two strong parents = One heck of a strong kid! and guess what?... you can now watch Edmonton run all over either Carolina or Buffalo in the Stanley Cup...and you can get yourself all caught up with those awesome Blue Jays as well!! Congrats Parker!
Love Kyle & Josephine
OH PARKER!!!!
This is such FANTASTIC NEWS!!!! I am so happy for all three of you (I actually started to cry when I read this latest post)!!!
You have been such an amazing little champ and I know you will continue to show us how truly amazing you are throughout this whole thing!!!
Again... Words CAN NOT EXPRESS how happy I am for you and mommy and daddy!!!
Way to go Parker!! When mommy told me you were going home I got goosebumps and she was almost bouncing through the phone. We are so happy for mommy, daddy, and you. Be prepared to be spoiled rotten and love every minute of it. Doyle and I can't wait to meet you. As soon as we're allowed we'll be by for our first visit!
Keep smiling big man!!
Sarah and Doyle
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