What Did You Say?

Parker has just recognized that he has a voice. Today, after his bath I decided to have Parker work on his rolling over. So while he was on his back, I began to roll him over to his front. Once he made it to his front, he popped his head up and started making some weird noises that we had never heard before. I looked at my wife and we were in shock. We were always told that Parker would definitely be delayed in speech so we never expected to hear him try and make sounds. When I repeated the drill for Parker, he again popped up his head and started making some noises. Afterwards, while he was watching his Baby Einstein he again started making the noises. We are so proud of our little boy. I know that this is hardly speech, but it is a step that needs to be taken so he eventually may.

I heard back from a center in the States that informed me that they have witnessed other ADA deficient patients with neutropenia. It did eventually correct itself, so that is encouraging.

Parker will be receiving his second injection of PEG-ADA on Monday morning. It will be done in his other leg, alternating legs every injection on Monday and Thursday. Tomorrow, his Nonna will be there to sooth his pain after his injection.

On that note, when his Nonna came to visit him on Saturday morning, Parker let out a big smile when he heard her say that she was coming in for her visit. It is nice to know that he is starting to recognize who different people are by hearing their voice. Now, when my wife and I open the glass door from the anti-room to his isolation room, Parker turns his head and stares at us. Even when we close the door to get changed he continues to stare, hoping that we will return.

I have a couple of new videos going up today. One shows you Parker checking out his mom as she gets ready to enter his room, and the other is of him experimenting with his voice. Make sure to check out the new videos each day. I have limited bandwidth at the moment so please let me know if there are any problems viewing the videos. I can always get more bandwidth if needed.

My apology for not writing an article until now as the Internet at the hospital was a little hit-and-miss today. Unfortunately, I did not get a chance until now, but please check in each day to see how the little monkey is doing.