Tuesday, May 23, 2006

Parker Takes It Like a Man!

Parker had his sixth injection of ADAGEN this morning. Recall that the purpose of receiving ADAGEN (PEG-ADA) is to give Parker the enzyme that he is missing. Parker must be on enzyme therapy for six months prior to being part of the Italian study. The injection takes place every Tuesday and Friday morning in the muscle in his inner thigh. He normally cries for about 10 minutes afterwards but once he realises his mommy is there he feels so much better. Mommy usually waits in the anti-room while the injection is being done and once it is complete she runs in to console her little boy. Parker is receiving a test tomorrow to see how well his lymphocytes are working in his body since starting the enzyme replacement therapy.

My wife and I are so overwhelmed by the response we have gotten from people that read the article in the star or saw the news on CityPulse at 6. A majority of the visitors we have had in the past few days have come from pulse24.com or thestar.com. We have received emails from friends whom we have not spoken with in quite some time expressing their concern with what Parker and his parents have been going through. My wife and I can not thank everyone enough for their thoughts and prayers.

Thank you again for everyone who has been visiting Parker's site. Please come back daily to see how our little boy is doing and to learn more about his disease caused by a single faulty gene stored on chromosome 20.

4 comments:

Stacia said...

Oh Parker!!! Way to go little man!!! You are very very brave!!! Your mommy is very very brave too!!!
I hope you have a good day today.
Take it easy, ok!

HUGS
xoxoxox

Natalie said...

Parker Poo,

I wish I could be there to give you a great big hug in person. You are such a little trooper! I hope you are looking out your window today and seeing this sunny day.

Lots and Lots of Love Little One!
Auntie Natalie xoxo

Stacia said...

Oh parker - i did not see the pic of you and your mommy when i looked yesterday!!!

I know you can see her smile under that mask...and soon you will see her smile at you all the time!!!

I hope you had a great night.

HUGS xoxoxoxox

Elizabeth said...

Parker,

What a trooper you are! I know plenty of grown-ups that couldn't take an injection like you! That just shows that you are a fighter and that you can do it!

You're looking as cute as ever...

Elizabeth
xo