Monday, April 02, 2007

A Tiring Day

To be honest, I am extremely apologetic for not writing for the past few days. I have honestly been a little more tired and much more stressed than normal and as a result, it has been much harder for me to write. So much has happened in the past few days and I have been concentrating more on that then writing the blog. Mommy is currently putting Parker to bed right now so I have a little bit of time to write today's article.

I guess I could write about quite a bit today but I have decided to hold off on most of what I could write today and concentrate on what I want to write today. We did have a trip to the San Rafaele today for Parker's ADAGEN injection. When we got there we realized that Parker was also going to have to be giving some blood since he had not given enough a few weeks ago. As always, Parker put every effort into fighting the nurses and his mommy and daddy so that he did not have to be poked longer than possible. Daddy had Parker's legs and arms as mommy tried distracting the little monkey while the two nurses took enough blood that was needed. This was definitely one of the many things we wish we never had to experience with our little guy. Sometimes, it is just so hard.

We also got to meet with a doctor on the team afterwards who let us know that Parker would have to begin an anti-fungal and anti viral medication, in addition to his Septra (anti-bacterial) medication for precautionary reasons. To be honest, we are not very excited about starting Parker on new medications as he tries to fight anything that comes at him in a syringe. Regardless, we will do our best to get Parker's medication into him with the least amount of struggle. Anyone who has ever had the privilege of meeting Parker can attest to the same thing- he is one strong monkey. It is so hard trying to hold him down in order to do things which are necessary. I just wish that I could rationalize everything with him and let him see that we are only trying to help him. His mother and I would NEVER do anything to hurt him and it really can be overwhelming when you see your little guy in pain or trying to protect himself.

I know that we are only at the beginning of this and we are trying to stay positive with every ounce of our being- sometimes you just have days when it just hurts and today was one of those days. Parker is scheduled to have IgG (Gamma) again this Thursday. Although, he does not really need it, the team wants to be sure that he is really protected. That being said, Thursday is likely to be another tiring day.

I promise to write tomorrow when I am feeling like I have some more energy. My wife and I have been sleeping a lot more lately. We find ourselves resting whenever the little monkey is catching up on his beauty sleep. As of yet, there is nothing planned for the DesLauriers family tomorrow except some new medications and some nice walks outside.

Ciao!

5 comments:

Natalie said...

Hello My Friends!

Parker Pants...what a little monkey you are with all that you have to go through...tell your Daddy that I love you all very much and that you are in my thoughts so many times through-out the day. I can only imagine how exhausting this must be for all of you.

I know how strong you are Parker Poo...everytime I see you I think to myself "holy smokes...how is a little guy of only 1 year so incredibly strong both physically and emotionally?!?!?!" Keep it up little sweetie-pie and know that you have so many friends and family in your corner.

Lots of love Kevin and Tracy. Stay strong...I love you both very much.

Love,
Natalie xoxoxoxox

Nana said...

My darling darling little man:

I know that this upcoming time is going to be the hardest of your's, mommy and daddys life but I know that you will be the strong and brave boy you have always been and that the end result will make all the difference in the world. We have got to all believe this is true and soon this will all be a bad memory. Be strong Parker, Kevin and Tracy - there is a reason for everything and you will make it through no matter what.

There will be a pot of gold at the end of the rainbow.

We love you so much.

Nana and Gaga xoxoxo

nonna said...

Hey Parker,

I am so sorry that you were put through a hard day, I can only imagine what your Daddy and Mommy went through today. Just when you think that things are going smoothly a hurdle always comes up. Thats OK Parker cause I know that you can out jump any obstacles that come your way! Please tell your Mommy and Daddy that they are doing an incredible job and we love them.

Stay strong DesLauriers

Love you tons

Nonno & Nonna

p.s. Kick _ _ _ Parker show them exactly how strong you really are.

Uncle Mikey said...

Hey Parker,

I hope Tuesday is filled with nothing but sunshine and cool breezes as you, mommy and daddy get a well deserved day together outside without any tests. You continue to inspire everyone back home who think about you all day everyday wishing you well and missing you more and more each day. Stay strong little man, everyday takes you one day closer to your family and friends who can't wait to see you home and well ASAP. Love you tons and tons.

Uncle Mikey, Auntie Christini and Jacob.

Franni said...

Parker,
Boy, sounds like you had a tough day today. And your mommy and daddy too. I wish none of you had to go through this. You really are inspiring. I bet your mommy and daddy distracted you with all of their love the rest of the day today and when you wake tomorrow, you will not remember a thing... only that you are loved.
I hope you rest tonight and are ready for the fresh air tomorrow.
Thinking of you everyday.
Thinking of your mommy and daddy everyday too.
Boy you guys are all so strong.
Kisses and Hugs.
Love,
Auntie Franni and the BOYS