Some Days Are Brighter Than Others

Today when I went outside I truly felt it was going to be a good day. It was the perfect spring morning. The sun was out, the air felt fresh and the grass in front of my home definitely looked greener. I had a very good feeling that this was the sign of something good coming our way.

Parker slept well the night before, as he has seemed to find a routine that he has become very comfortable with. It pretty much consists of play and eats a lot during the day to keep mommy and daddy very busy, and then sleep when they go home. Now, my wife and I have decided that he does this because he does not want to waste a second he has with us. We both appreciate that very much.

We had our meeting with Dr. Aiuti, from Italy today. I had sent him about 15 to 20 very specific questions prior to our conversation that I was hoping he could answer for me. I must say that we were both very impressed with his answers to my questions, as he was very detailed with his explanations. I did write down the answers to his questions as he spoke, but I do not think it is ethical to share the specifics, as I do have an obligation to keep his unpublished work unpublished until he writes about it. I will say that it was a very positive meeting and that this does create a light at the end of a very dark tunnel.

My wife and I will be making a decision Tuesday evening and informing the hospital and our family and friends of our decision on Wednesday.