Daddy's Little Prince

It had been five days since I had actually been able to go into the isolation room with Parker. I was so excited when I gowned up this morning as I looked forward to spending some long awaited time with my son. After we walked around the room together so Parker could make sure that everything was where it should be we made our way to tummy time. Parker decided to show his daddy how he had been working on his rolling over to one side. I was so impressed with the progress he had made over the past few days I decided to show him how to finish the rollover so he could go from being on his back to him tummy. Parker was very pleased with his accomplishment, as was his daddy.

I had mentioned in the previous article that Parker was going to be starting a new antibiotic today called Pentamidine. It was to be given through an I.V. and could cause some side effects like nausea. Parker did well with the new antibiotic. He did vomit 90 minutes into the infusion but was able to complete the antibotic. At the same time the I.V. was being given to Parker, some blood was taken to get the information they needed to administer the PEG-ADA in the upcoming weeks. From the blood work done today, we did notice that Parker's neutriphils increased slightly since coming off the Septra.

Unfortunately, Parker was unable to supply enough blood from his small veins for all the of the tests that they needed to do. As a result, they will be taking more blood tomorrow. In addition to the antiobiotic that Parker receives as a precaution for PCP Pneumonia, he is regularly checked to see what his immuno globulin levels are; a form of B-cells. Parker is unable to produce B-cells but receives them through a transfusion whenever his levels decrease. Well, it appears that that time has come again and we anticipate that he will receive this transfusion tomorrow.

Nana is coming from Peterborough tomorrow for a few days. This should give my wife some needed rest over the next few days. It is much easier when you have someone in the room who can help you. Of course, Parker is also looking forward to spending some time with his Nana.