Hoping His Numbers Go Up

I am writing this message nice and early this morning which should put me back on track for my daily articles. I know that we have quite a few visitors each day so I don't like to disappoint people by not having an article for them to read when they get here.

Last night, Parker went down around 7:30p. We were hoping that we could get him to sleep through the night like he used to so we were keeping our fingers crossed. It was around 9pm that the little monkey started crying, but it was short lived. He just needed someone to hold him while he burped. He usually gets a feed right before bed. Most of the time he falls asleep during the feed and he doesn't always give us a burp at the same time.

At half past one, he started to cry softly but we let him settle himself and everyone was happy. Then at four in the morning, he decided he wanted some attention so our little experiment ended there. Parker ate five ounces of food and then went back to bed for a few hours. Currently, he is getting a bottle by his Nana while my wife tries to get some rest.

On Tuesday, Wednesday and Thursday Parker gets his Septra. For those of you who have forgotten or are knew here, Septra is a precautionary measure for PCP pneumonia. He receives 3.8 mL three times a week orally. My wife used to give him the medication, but feels more comfortable when I give it. So, at 9:30 this morning, I will give Parker his dose of Septra.

Parker has a trip to Sick Kid's today. Every Tuesday and Friday we make our way down to the hospital for his enzyme injection. I really am hoping that the ADAGEN starts taking a greater affect. We are waiting for his numbers to come up so that he is less susceptible to germs. I know it takes a little while but we have been waiting a couple of months now and would like to see his lymphocytes increase in numbers. We have been told to be patient.

I inspected Parker's heat rash this morning. It does look better. It is definitely going to take a few more days of cool air and corn starch but I know we will rid him of it shortly.

Let's all hope that his numbers increase the way we are hoping they will today.